Thanks to TV Oost for bringing us a heartwarming report on Melissa’s story. Their attention helps us enormously in making the need for the operation known. Watch the full clip at the link below.
There are SO many of us who are seriously ill, but whose condition is considered “beyond the scope of care.” How is it that a condition that affects our nervous system and basic functions still does not have access to care in Canada? I live in BC (British Columbia) and have experienced the same obstacles as others in the various provinces.
Today I had a chance to ask a question during the questions to the Prime Minister. Connor lives in Hazelslade, UK, and lives with Ehlers-Danlos Syndrome (EDS), craniocervical instability (CCI) and Lyme disease. EDS is a group of 13 genetic disorders of the connective tissue that can affect people in numerous ways.
CCI causes excessive motion between the skull and spine – a common complication in people with EDS, which often gets worse over time.
