There are SO many of us who are seriously ill, but whose condition is considered “beyond the scope of care.” How is it that a condition that affects our nervous system and basic functions still does not have access to care in Canada? I live in BC (British Columbia) and have experienced the same obstacles as others in the various provinces.

Today I had a chance to ask a question during the questions to the Prime Minister. Connor lives in Hazelslade, UK, and lives with Ehlers-Danlos Syndrome (EDS), craniocervical instability (CCI) and Lyme disease. EDS is a group of 13 genetic disorders of the connective tissue that can affect people in numerous ways.
CCI causes excessive motion between the skull and spine – a common complication in people with EDS, which often gets worse over time.